"Their fight was fierce, their love was deep, and their story will not be forgotten."

This memorial space is dedicated to the lives lost to rare disease - lives filled with courage, resilience, and love.

They were more than their diagnoses. They were parents, siblings, children, partners, friends, advocates, artists, dreamers. They were rare, and they were radiant. Though their time with us may have been brief, the impact they made was lasting.

We hold space here to remember, to grieve, and to honor. Their stories remain at the heart of our mission. We continue this work not only because of them—but for them.

May their names never be forgotten. May their memory push us forward in our fight to Live Rare.

Every name listed here represents not just a life, but a legacy. A voice that called for awareness, equity, and compassion. We honor them by continuing the work they started and by ensuring that their light or the lights that follow are never dimmed by silence or invisibility.