“NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community.” - NORD

“A National Institutes of Health-funded research network working toward faster diagnosis and better treatments for people living with rare diseases”  - RDCRN

“Get information for people with disabilities and their families, including what disability benefits are available while working, getting paid as a caregiver, and finding jobs.” - USA.gov

Information on disability rights & discrimination, as well as various supports and resources for those with disabilities